We had a normal blood test on Tuesday, even including some extra tests for hormones like growth hormone, thyroid, tsh and anything that else would point to endocrinological reasons for his poor growth ( Read more... )

Little T's hemo apt went well. Blood stats all normal. Arm still shrinking. No can explain why he falls over while sitting. He needs to be referred to neurology. Just once I'd like to be told "Don't worry, it's normal." Used to happen all the time at checkups with Special K. Oh well ( Read more... )

Special K had her 4 year checkup. She's 30.5lb (25 percentile) and 39" (35%). Her vision is 20/40. Her hearing is normal. Of course I expect her checkup to be normal. Yet it was nice to go into the doctor's office and have them say "everything's normal ( Read more... )

Little T's radiation therapy has been officially cancelled. Hooray! His platelets continues to look great, though once again they failed to get fibrinogen. Sadly his white blood count was elevated because he's a bit sick. He caught some kind of cold from Special K and had a slight fever yesterday. He also has goopy eyes and a runny nose. Poor

Little T's platelets were his best ever at 261. Even after two rather painful attempts, the lab tech wasn't able to get a good enough draw for fibrinogen. Poor guy has a lot of scar tissue around his veins now. His tumor continues to shrink overall. In fact in some places his left arm is now smaller than his right. Unfortunately his hemo doc ( Read more... )

Sorry to be so quiet. Kite flying was excellent. The winds picked up our kite and it flew high with little effort. In fact Special K was a little disappointed, because she kept wanting it to crash. Little T has been cleared for limited contact with people and we figure that meant Mother Nature. So he scooted about on the dirt with great joy. ( Read more... )

On Wednesday we went to the hospital at 9am and didn't emerge until 3pm. It's taken me this long to recover and write about it. Little T had an MRA (magnetic resonance image with dye contrast)on his arm. We saw his Hemo. His platelets were 207. After a lot of calls about whether leave his IV in or not, which took almost two hours, we left his ( Read more... )

I got up at 5:30am. C got up at 5. We went to the hospital. Little T went under. I worry a lot when Little T is anesthetized. More so than when he gets chemo. I can see him he gets chemo. He screams because he hates being held down, hates being stuck with a needle, but I can see him. I know he's still alive. But when he goes under, I don't ( Read more... )

On a more important note, but less decided. We've decided to go through with the numerous tests needed for radiation therapy and see how well Little T responds to no chemo and weaning of steroids. At Tuesday's apt, his platelets were above normal at 176, but his fibrinogen was still below normal at 186 ( Read more... )

On the plus side, his blood work numbers continue to improve. His platelet numbers are now normal at 154. Woo hoo!!! Fibrinogen is higher too though below normal at 172, but he uses fibrinogen to clot off the tumor, so that doesn't bother me ( Read more... )